I have done the #chillichallenge for ME. Ouch. Now you do it. John
Here’s info about donating to the #ChilliMEchallenge cause:
Go to http://www.gofundme.com/chillimechallenge (these funds go to Columbia University research in the U.S.)
or http://www.justgiving,com/chillimechallenge (these funds go to Invest in M.E. research in the UK)
or you can text donate:
Ireland text HOT to 50300 (€4) U.K. text CMEC73 to 70070 (£4)
Well done, John! You’re a star. You’re doing a fantastic job with this!
For those who don’t know about the ME Chilli Challenge, it’s to raise awareness and research funds for ME.
If you’ve been challenged (and now John has challenged us all!), you can either eat a chilli or take a shot of tabasco sauce and upload a film of yourself doing the challenge onto YouTube; or you give a donation to one of the two ME biomedical research charities (there’s a UK one and a US one).
Either way, you nominate two other people to take the challenge or donate, and so it gets passed on!
Details are on this site:
If you have ME, be careful of the challenge – because of your illness you may have issues with your gut that you’re not aware of and you might find out this way, which would be unfortunate! You could always tone it down and do a suck-a-lemon challenge or something. As long as it’s entertaining!
Thanks again, John!
That was great! Thank you so much for being brave enough to take on this challenge! Especially since you don’t like hot food.
You are helping ME patients all across the world and I wanted to let you know how much I appreciate it. We desperately need more proper biomedical research studies for ME. Thanks again.
Thanks for being such a good sport even though you clearly don’t like chilis. It means a lot to many people with ME to see your dedication and empathy…and that you are willing to scorch your tastebuds for the cause! You will have to take your revenge by nominating some others 😉
Brilliant, thank you for taking the heat!
Thanks so much for your support John! The Institute of Food Research kindly provided some tips for all those braving the Chilli ME Challenge – http://www.ifr.ac.uk/news/latest-news/2015/07/heat/
John. Thank you. I just emailed a suggestion to BBC Bristol for a follow-up to your recent, excellent show about people living with ME. Just in case the email doesn’t reach you, the essence of it was:
One of the foremost clinical researchers working this field — Prof Mady Hornig of Colombia — will be in the UK towards the end of October to deliver a lecture.
Prof. Hornig published a landmark piece of research earlier this year, working in conjunction with Colombia’s Prof. Ian Lipkin and others. She speaks compellingly about ME and would, I’m certain, be a fascinating guest.
The lecture she’s delivering is being organised by the charity Invest in ME.
Oh, and she’s a fellow chilli challenger, so you’ll be able to compare notes (bet yours was hotter!). Please, John, try to make it happen.
Hi John – I think you might be interested in this petition that has just been launched by thousands-strong advocacy platform #MEAction demanding retraction of misleading claims of “recovery” in the PACE trial that were made in relation to the original Lancet paper and in Psychological Medicine:
I hope that people will please sign and spread the word. Patients deserve good science: the background pages to the petition that explain what went wrong in PACE will surely horrify all scientists.
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